I have epilepsy. I’ve had epilepsy since I was 11 years old and it’s genetic. Both my sisters have epilepsy as do other members of my family. Among my sisters I have the most severe case. It’s one of the reasons I’m permanent disabled. I’m not resentful about it. It’s just a part of life. I honestly cannot imagine life without epilepsy I’ve lived with it for so long. FYI I’m turning 35 in June.
On DeviantArt there’s a contest one of the members is holding. All visual arts are accepted, be they crafts, cosplay, drawings, etc. It just needs to be visual. The theme is to take a word and create a visual depiction of it. The title is the word, and the viewer must be able to see a clear image of said word. We can choose whatever word we want, put the definition in the description of the work, and why we chose it. In my case it’s “Synesthesia”.
After I have a tonic-clonic seizure (the link is to a video of me having a seizure; it may be considered graphic but I’m providing the information to give you an idea of what my seizures are like) I experience synesthesia for several days (or even a couple weeks) afterwards. What’s synesthesia?
From Wikipedia: Synesthesia is a perceptual phenomenon in which stimulation of one sensory or cognitive pathway leads to automatic, involuntary experiences in a second sensory or cognitive pathway. Full information can be read here.
In my case I see sound. It can be overwhelming, especially considering it’s not something I was born with and only experience every once-in-awhile due to my seizures messing with my senses. I hear and see sound for several days or even over a week. Colors, shapes, patterns, they fill the room. When I close my eyes I still see them. Earplugs are my friend for the duration of the experience. My favorite sound is my cat Cacoa purring. It’s a soft brown triangle with waves of green moving in circles, the green being prominent when she inhales and fading as she exhales. My other favorite sound is classical music with a prominent cello. That’s a sound I can’t even describe.
For this quilt I’m using foundation paper piecing. The pattern is from McCall’s Quilting and called Beacon Lights. It’s a free pattern. I’m not following it, just using the FPP block provided. I used a tutorial provided by Teresa Down Under. She has AMAZING tutorials; please go check out her blog. FPP was really intimidating, even daunting, until I saw what she did with the Storm At Sea quilt block. SO MUCH EASIER NOW!!!
The quilting will be done by hand, but I’ll do it in such a way that it doesn’t take away from the overall appearance. I want the quilting to be background noise instead of being prominent. The finished quilt will be three rows of three blocks. It’s not large, and can work as table decoration, a wall hanging, or even a baby quilt. I’ll have it listed on Etsy when it’s done.
I have videos of the WIP as well! You can see them on my YouTube channel here.
I finally caved in and got a Smartphone via Credo in December. Now I can make video and take pictures more easily and frequently. My Instagram is WAY more active than my WordPress page, but I’m doing my best to remember to come by here and make a post more than once every six months. My Instagram handle is ReneetheChaosfay.
FYI the featured image at the top of this post is a pincushion my mother made. It’s an adorable penguin I’ve named Caesar. If you know the story of Julius Caesar I think you’ll get a good giggle out of this.